Transitioning from seeing a pediatric neurologist to an adult neurologist

Hospital appointments and consultations aren't generally fun times and transitioning to a whole new specialist can seem daunting and scary - which is definitely a normal feeling. For those with an epilepsy diagnosis, a crucial part of keeping on top of your diagnosis is seeing a neurologist. As a child and adolescent, you would see a pediatric neurologist, but as you edge towards 17/18 it becomes apparent that you need to transition to seeing an adult neurologist.

Jenifer Ann joined Isaac on Drive this week to give some tips and comfort about the change and how to navigate it as a patient (and also a parent).

The change needs to happen, Jenifer suggests at age 16 it is a good idea to start thinking about seeing an adult neurologist. A crucial part of the transition is taking as much information as possible from your pediatric neurologist and/or GP. Your pediatric neurologist will make a referral for you, based on your seizures and diagnosis (how regular they are and your types of seizures).

Make sure your seizure diaries are up to date and you keep on-top of your medication and advice from your pediatric neurologist. Ensure you are keeping to your action plan. Doing all of these things will ensure you are equipped for seeing your adult neurologist.

For parents/caregivers, this process can also be stressful. Ensure you do your research and pace yourself. Look into who is taking on new patients but ultimately take as much information as you can from your child's pediatric neurologist. 

Hear all of Jenifer's tips below.

Jenifer Ann joins Isaac every Monday from 3.20pm to talk about epilepsy and how those with a diagnosis can ease their challenges.